A Gluten-Free Vegan Mom Who Knows

A raw, grain-free, corn-free, soy-free, oil-free, celiac mama raising her two healthy celiac girls.

November 23, 2013
by admin
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Celiac Disease: Neurological Symptoms after a Gluten Exposure

When researching Sydney’s non-itchy, ever-lasting rash tonight to see if her rash may be connected to Celiac Disease, I came across this article: “What I want to know about Celiac Disease”

Rash

 

Alysa’s raw emotion (in the above article) resonated with me more so today because after Gregory came home from work, he asked, “How’s your stomach today?” Me: “Better than yesterday.… Read more

July 16, 2012
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Celiac Disease and Pregnancy

Dr James Braly and Ron Hoggan assert the following when discussing those whom unknowingly carry the celiac gene:

“There is a high prevalence of infertility, regardless of which spouse has celiac disease. If the expectant mother is untreated celiac, she is more likely to experience recurring miscarriages, premature births, and low birth weights.… Read more

June 21, 2012
by admin
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This may be one of the most embarrassing symptoms of all when dealing with gluten intolerance.

Recently I was asked in a private message if I heard about a certain symptom when dealing with gluten intolerance. It so happened that I have dealt with that symptom quite often.

I describe this particular symptom as a gurgle in my descending colon, while anonymous describes it as a “lower intestinal tract ‘spasm’ (if thats the right word?) All I know is it feels like the last 6 to 8 inches of the intestine (right at the end of the anus) Makes the most embarrassing NOISE!Read more

Celiac Disease and Pregnancy

June 1, 2012 by admin | 0 comments

Dr James Braly and Ron Hoggan assert the following in their book Dangerous Grains when discussing those whom unknowingly carry the celiac gene:

“[t]here is a high prevalence of infertility, regardless of which spouse has celiac disease. If the expectant mother is untreated celiac, she is more likely to experience recurring miscarriages, premature births, and low birth weights. Italian obstetricians have recently found undetected CD to be so common among women who have problem pregnancies that they are advocating that all pregnant women entering their clinics be routinely screened with blood tests” (Dangerous Grains 28-29).

Both of my girls were born premature (I was diagnosed with celiac disease when Sydney, my youngest, was 11 months old).

I went into labor with Ainsley at 31 weeks, and with Sydney I went into active labor five times starting at 19 weeks up until my water broke at 36 weeks. With Sydney I received weekly progesterone shots starting at 16 weeks and took oral meds when I went into active labor. Besides that, I had 4-6 contractions an hour from 19 weeks until my water broke at 36 weeks.

This was just another symptom of many while spending 33 years as an undiagnosed celiac (my symptoms started in childhood).

Greg and I also had fertility issues of which were diagnosed with fertility testing. Fortunately for us, I found out I was pregnant five days before our first appointment with the fertility clinic.

Dangerous Grains. Braly, M.D., James and Ron Hoggan, M.A. 2002.

Genetic Testing for Gluten Sensitivity and Celiac Disease

May 30, 2012 by admin | 0 comments

The HLA-DQ2 and HLA-DQ8 genes can be determined through a simple blood test while indicating if you have or have the potential to develop Celiac Disease. HLA-DQ2 and HLA-DQ8 are Celiac genes. This is a great test linked to Celiac Disease; however, is there a way to test for gluten sensitivity?

 

Greg and I each have one positive DQ2/DQ8 gene while Ainsley and Sydney both have a positive DQ2 and a positive DQ8. Greg and I each inherited the gene from one of our parents while both of our girls inherited the Celiac gene from both me and from Greg.

 

I’ve been familiar with the HLA-DQ2 and HLA-DQ8 genetic testing since I was testing in 2008. However, I never knew that the HLA-DQ1 and HLA-DQ3 genes indicate gluten sensitivity. Unfortunately, most labs don’t provide the results for the DQ1 and DQ3 during genetic testing. Hopefully this will change one day and the results for the DQ1 and DQ3 genes will leave the lab where they are tested.

For more information as well as an explanation and diagram of how a DQ gene trigers Celiac Disease and/or gluten sensitivity watch this twelve minute video: “The Genetics of Gluten Sensitivity”

What are your thoughts after watching this video? What do you take away with you after watching “The Genetics of Gluten Sensitivity”?

Dr Michael DiMarino at Jefferson University Hospital asserts that two negative genetic celiac markers mean that there is a 98% chance that that individual will not develop celiac disease in his/her lifetime.

 

There are two ways you can go about being genetically tested: get a prescription for the blood test from you doctor or order a test from MyCeliacID. My insurance covered my blood test. However, MyCeliacID charges $329 if you choose that route.

 

Other Gluten/Celiac Testing Options
Happy Genetic Testing!
Priscilla

May 30, 2012
by admin
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Health Quiz for Determining if You May Have Celiac Disease from Peter Green’s Celiac Disease: A Hidden Epidemic

SECTION I: SYMPTOMS
Check each of the symptoms that you have experienced at least once a week during the past three months:___ Bloating
___ Gas and/or stomach cramping
___ Diarrhea or runny stools
___ Constipation
___ Joint pain
___ Numbness or tingling in your extremities
___ Itchy skin lesions
___ Constant unexplained fatigue
___ Frequent headaches or migrainesSECTION II: DIAGNOSES
Check if you have had or been diagnosed with any of the following:___ Irritable bowel syndrome
___ Eczema or unexplained contact dermatitis
___ Fibromyalgia
___ Chronic fatigue syndrome
___ Nervous stomach (non-ulcer dyspepsia)

SECTION III: ASSOCIATED ILLNESSES
Check if you have any of the following:

___ Lactose intolerance
___ Osteopenia and/or osteoporosis
___ Autoimmune disorders
___ Thyroid disease (hypo/hyper)
___ Diabetes mellitus (Type I)
___ Sjogren’s syndrome
___ Chronic liver disease
___ An immediate family member with an autoimmune condition
___ Peripheral neuropathy
___ Non-Hodgkin’s lymphoma
___ Small intestinal cancer
___ Psychiatric disorders or depression
___ Anemia (iron deficiency)
___ infertility

SCORING:
If you have checked one or more lines in EITHER Section I or II and have ANY of the illnesses in Section III (especially males or women under forty-five with osteopenia and/or osteoporosis), you should consider testing for Celiac Disease.

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December 22, 2011
by admin
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Celiac Disease Doctors and Nutritionist/Dietitian

I am often asked to recommend celiac disease specialists – both doctors and nutritionists. 

Here are my recommendations for those of you in the Philadelphia / South Jersey area. 

Dr. Anthony J. DiMarino, Jr.
William Rorer Professor of Medicine
Chief, Division of Gastroenterology and Hepatology

DiMarino Kroop Prieto Associates
Gastroenterology

Thomas Jefferson University Hospital
26 East Red Bank Avenue
Woodbury, NJ
(856) 848-4464

Dr.
Read more

September 22, 2011
by admin
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Sending a Celiac Student to School: An Information Classroom Handout Included

It is that time of year again, and the girls and I are supplementing our homeschool curriculum with amazing classes. However, along with those classes comes the risk of the girls and I coming into contact with gluten.

On Mondays, my girls and I attend a full day weekly course called Classical Conversations where they are learning world history, US history, Latin, grammar, anatomy, science, math and art.… Read more

August 16, 2011
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Newly Diagnosed: Celiac Disease

Yesterday, I received an email from a friend of a friend asking for help with going gluten free: “I just recently found out my husband and 2 of my 3 children have celiac disease. So needless to say, my family is going gluten-free and I need HELP!”




Here’s my response: “Are you in the area?Read more